Got Asked To Change My “About Me”

Today I was contacted by the wife of a friend that I served with in the Army. Her husband was a fellow member of my unit in 2011. She wrote to thank me for all the work I have done with trying to help veterans, but asked that I changed my about me to no detail the events that happened. I have a huge respect for her husband and even more for how strong she has been in his absence.
I of course agreed and immediately changed the details.
So if you see any differences that is the reason.

 

Disabled Parking At College – Getting A Voice For Disabled Students

Lately I have been doing some work with the university on students with disabilities. This all spurred from a parking ticket I received in January. First let me explain what happened with that and some of the things that have happened and what I feel is harassment by the university police and parking services departments and that will lead into how I got involved with “Students With Disabilities” here at my school.

Parking Tickets

I go to a university that is like most. They have designated parking for students that commute. Now if you have a disabled parking tag, placard, or plate, you can park in any disabled parking spot per their rules as I was told in August when I registered for classes.

What that really meant is that you still have to pay for parking for the semester or full year to park in those lots and use those disabled  parking spots. That was the start. I thought this is wrong. Although I have the GI Bill and am stable financially, not all disabled patrons are in the same boat. Some have a limited income and parking passes are outrageous. $124 per semester or $248 for the year. ON top of all the other costs for school that can be stressful.

Second, most of the lots around the campus are for staff or faculty only before 3:45 pm. So if you are like me an have most of your classes before then you must park in one of those student lots. Unfortunately, those student lots are always full and many students leave their cars there from early morning to evening and just walk campus. Now if you have a decal and a placard you can park in the faculty staff lots that have a disabled parking spot, but most are full because the disabled parking spots are VERY limited on campus. to the point that a education building that houses over 300 teacher offices alone, plus any commuting students, has only 6. This is not enough.

That brings me to the tickets. After receiving a ticket in Jan., I went to the Parking office to clear it up. They told me that my placard had expired. I don’t them yes but along with it was the temporary that must be displayed with the expired placard. She went on to explain that was not necessary that only the temp placard needed displaying. I corrected her because the law in Virginia has just changed and within the first 30 days of expiration, all temp tags must be displayed with the previous tag. I remind you this is all because my school does not recognize disabled veteran plates from out of state for disabled parking. So after I corrected her, she looked it up and I filed my appeal. The next day I sent an email to the university about all the trouble I have had. I simply said “If I am having this much trouble, I cannot imagine the amount those that are afraid to speak up have gone through. This school has a definite problem with recognition for disabled students with small door ways, poorly maintained ramp access, disabled door buttons that do not work and staff that have no clue how to handle accommodations for those with a disability.

a few days went by and I received an email back that simply stated “We would love to here from you and welcome you opinion! Please forward all parking concerns to the university parking office. Thank you.”
Really? because I didn’t send the email to the parking concerns email and I have more concerns than just parking. So I emailed back expressing that concern as well. I never heard back.

Then on the 24th of January, I received another parking ticket. For $250 dollars. For parking without a valid disabled placard. By that time I have my replaced and renewed permanent placard. Apparently because they require that the university decal be hanging from the mirror as well, they gave me a ticket for improper display of the decal because they could not read the bar code. Yet, if I had blocked my university decal, I would have received a ticket for not displaying that. So off to the parking office I went again.

I was not happy, nor cordial this time. I explained how I am feeling targeted because certain shifts of workers now know my vehicle and lots I park in at given times because of my schedule. She assured me that was not the case. After explaining what happened she used a hole punch to put a string through my parking decal. This would allow the decal and placard to be displayed correctly at the same time.

All was good for about a week. Then last week happened. It snowed and class was cancelled while I was in a building. When I came out to my vehicle I was shocked. I had a immobilizing boot on it! I was outraged. I call the parking office and they said that the officer must have looked at the record and because I technically had unpaid tickets for parking in a disabled spot they booted my car. I explained how all those were given in error and told her to look at the file. She was very apologetic, but it was going to be over an hour before an officer could come to my vehicle and remove it because it took a supervisor to do so. I was livid.

Finally they arrived and removed it and apologized again. I told them I would be talking to the Dean of Students and the Disabled Student Committee about these incidents and that there would be a formal complaint. That this has moved beyond harassment. His explanation was that the officer looked at my plate and saw the outstanding tickets and could not see my placard because snow was covering the windshield. What? I asked him why none of the other vehicles parking in the other 4 disabled spots were ticketed then? His response was “I don’t really know.” I just looked at him and got in my car and left after recording his name and badge number.

So all of that lead to a meeting yesterday with the dean of students and Disabled Student Services. After explaining all of this with my tickets, pictures, video and recordings of the events, they were very receptive. They talked with me about how the police are not trained properly on campus to understand changing law and how disabled students are seen as a nuisance the university “has to pander to.” The Dean assured me that is not hte case and they they work hard to make all of the university accessible to all students.

I went on to explain how that is not the case. Many of the areas that students can go are not wheelchair accessible. Many of the ramps are old and need replacing and repair, plus no one maintains them in inclement weather as I witness last week. Many automatic door buttons do not work and force students to go around to other entrances. Many elevators are at the ends of the buildings away from the accessible doors. Much of the recreation centers are tough to maneuver and navigate from a wheelchair or you must travel a long distance to get to an elevator. After research, there are a very limited number of rooms for living accommodations for students housed on campus. Finally, the universities definition of disability is very subjective and could leave a disabled person with very little support.

After all was said and explained the Dean took much of it down. Today I was asked to come see him this afternoon. He would like for me to speak for disabled students at the next University Improvements Board Meeting. I accepted.

Some of the disabilities that the university does very little for are PTSD, Rape Victims, Incontinence, and Phobia Disabilities. I will be focusing on these and a few improvements to policy and accommodation that could be made.

I will keep everyone posted and cross your fingers that they listen!

New Support Group and VA Services Certification

Well, IT’s been a little while and I am back on track to recovery and back in graduate school. Finally. Thank you to all that commented, tweeted, etc. It was great to see the support from you all as well.

So most of you know that I have been working with the VA on a Incontinence Support Group here in my area. It was initially an idea that stemmed from other group counseling. I originally just brought it up to our group counselor and she thought it was a great idea.
After some research on both our parts, we found out through survey of about 3,000 disabled vets that at minimum 250 of them experienced some form of incontinence. We took those numbers to the VA and they were able to expand upon them. Currently in the VA’s window of care, there are approximately 20,000 disable veterans with incontinence symptoms, with about 10,000 of those actually getting supplies from the VA.
We have been in talks and are working with many different vendors and manufacturers to find a way to get better quality supplies to the veteran with little to no cost. We are still waiting on approval from big VA finance.
Essentially the program would have two parts. The first being the supplies for those that sign up. Vets that do, would be able to possibly get better / higher quality supplies and have their cases reviewed to see what they would qualify for and if their disability rating / compensation should change.
The second would be the counseling part. The VA wants feedback, so the program would allow for that. The one on one and group counseling would provide an avenue for veterans that have a similar problem to connect and share information, advice and even experiences. This would provide a place for those that are uncomfortable to have a space that they can possibly let their guard down some.
In all, the program will be comprehensive and all inclusive. We want to make people feel like their existence matters and that no disability is worth anything that could harm yourself or those around you. We are all in the same boat and should be willing to help one another. I want to create a platform for veterans to have a voice. To share that voice. And to make change with that voice.
We are hoping for results back fromt he vA by mid march but I will keep you all posted.
If you have any questions about the program or need help with getting better supplies or just reviewing your case in general, make sure you talk to your VA liaison or feel free to shoot me a message or email. I am always here to help and I will always be able to steer you in the right direction.

My Last 6 months

Hello everyone.

First off, Happy New Year.
I know I have been gone. I left a few people hanging and for that I am sorry. Most specifically to Marc from Wearing adultdiapers.com. He has a big plan and a lot of good things going and I was hoping to be a part of that and due to my personal issues I was unable to fulfill my promises. For that I am sorry Marc.

This all started shortly after I committed to doing some work for Marc and helping his cause. I was scheduled for a routine back procedure that had been done a few different times. Its purpose is to relieve the pressure on my back from fluid that gathers around a fused vertebrae, in order to prevent it from pressing on my spine.
I went into the procedure and all was going fine. It seemed to be the same thing as all the other similar procedures. Afterwards I am required to lay in the bed for 30 minutes to ensure everything is okay. Well this time it wasn’t. After about 5-10 minutes, I started losing feeling in my lower half. The doctor could not figure out what was wrong. My blood pressure spiked and I started getting dizzy before I passed out.
After I woke up from anesthesia I was told what happened. Apparently, the repeated procedure had caused a blood clot that formed internally. It built up in-between the vertebrae and caused fluid to gather there quickly and push against my spine. Blood became unregulated to my lower extremities and not returning to the heart and my blood pressure spiked, plummeted, and I went into a semi-cardiac failure.
Everything was thought to be fixed, but I still had no feeling below the waist and they found bruising on the spinal cord is the way they described it. They were confident that it would heal and go away.
It took two weeks to get feeling back and another two to get motor control strength back. After about two months I was back to moving, but the blood clotting issue was still there. The doctors decided they needed to go in and clip off the blood vessels that keep clotting in the area. After much recovery, I was apprehensive to go through with another surgery, but I agreed. The doctors went in and removed the issue, but the swelling and trauma from the surgery set me back with recovery. It took another 2 months to get completely recovered.
During all that time, I suffered from some depression. Hopelessness is what I would more accurately describe it as. I was unable to get myself up or move without assistance. I started to relapse into the depression I suffered from after my injuries. An easy thing to do I was told. I would refuse to get out of bed or even interact with my family. I didn’t attend even thanksgiving with family and friends. After seeing some help though, I was able to pull out of it. I still struggle today, but I am on the mend.

During all that time my family has been through a lot. My kids unable to fully understand what was wrong and why I was the way I was physically, mentally and emotionally. They suffered and that became the reason why I needed to be stronger than depression.

However, I was not the only reason they suffered. Since June, we have lost 3 grandparents, two family pets and were forced to move due to heavy rain storms causing flooding and subsequently mold in the walls of our home. We lost a bunch of our belongings to include much of my recording equipment and studio. We live in Military housing and they were great working with us, but this was a difficult transition on all fronts for the whole family, especially without their husband and father present to help them.
We lost 3 of my grandparents. All of which were already in poor health, but so close together seemed to be one big shock after another. Then our family cat was taken. Where we live has strict leash laws. Our cat had gotten outside a few time but was always back a few hours later. What we found out after 3 weeks was that animal control picked him up. They didn’t bother reading his tag and tried to take him to a shelter. He got aggressive with them and bit two separate workers. Under the law, since no owner claimed him and he was aggressive and hurting people and was hostile to other animals, they put him down. My family was devastated.
Lastly, our dog started having issues. He was young and only 4 years old. My son had gotten him as a birthday present as a puppy. He was a great, protective, fun loving and loving dog. He even slept with my wife, no exceptions, during her pregnancy to protect the baby. We found out that he had cancer. A tumor had developed on his heart and he would have to have surgery. We went through with it and he seemed to bounce back, but after just a couple weeks he seemed worse. The vet discovered that the tumor had come back even worse and in numbers this time. The week before thanks giving we had to put him down. He was suffering too much.
So life has been crazy. Somehow, in all that I was able to still get A’s in my classes, my wife had a baby, and we were able to travel from Christmas. Which is where we are right now. We head back on the 6th of Jan. to back home to start the New Year and put 2015 behind us. With all that has happened in the world to us as people, to my family and to myself, we want to make this year better.
I have big plans. I am participating in a veterans radio show for the VA. I have partnered with a few people to get a exercise, personal enrichment, and social networking group for all veterans together. Finally, I am a father to a beautiful baby boy. I want to show my kids, what it means to be resilient. What it means to conquer fears, limitations, and self-doubt. 2016 will be about discovery, trial and error, and building a better future. I am hoping to share that all with those that stuck this out with us.
Thank you to all the kind words of support and look for my posts to come.
The podcast will be back up and running. Unfortunately, in the flooding I lost most of the recordings I had already done. I am hoping to get Marc back on and all the others that would love to come on and tell their stories.
Thank you again to all of my supporters and here’s to 2016 and a new beginning.

Update

After 5 surgeries, 6 months in the hospital and the new addition to the family, I am finally getting back to being better.

I will be writing tonight about all the ventures of what has happened and what I learned.

Plus a little bit on my son’s arrival and all that came with that too.

Update to Blog and Podcast

Hello all. I know that I have been MIA the last few months. I have gotten a handful of emails asking if all was alright. I want to assure you that everything is now fine. I had a few things all happen at once and although that should not be an excuse, I should not have left you all hanging like that. I am sorry first to those that have listened and have been very supportive. Second, I am sorry to Marc from wearingadultdiapers.com – He has been great in helping me out and I left him on the hook for far too long. I will be posting his episode here soon that we recorded all the way back in July. (I know)

What has happened
I had to 3 emergency surgeries and the recovery has been slow and painful. On top of that I have a wife that is 8 months pregnant and have had to focus attention there as well. Lastly, my dog. He is one of my best friends. He has been diagnosed with cancer and is only 6 years old. He has a very short time left and after surgeries for him did not help, I have been trying to spend time with him and make him comfy. The plus side is he gets to eat whatever he wants. Yesterday we cooked and shared a package of bacon.

I will be back at it this weekend. Thank you everyone and know I did not abandon you all, just took a break.
Thank you,
Archer

Where I have been and whats happened

It’s been a brutal month and a half.
I have a dog that is my best friend that is not doing well and is on his second surgery, I had to have surgery myself to fix a back issue, and recovery has been tough.
I owe it to my listeners to be better at posting.
The good news is that I have been in talks with a few different people and things have been going well on that end.
I am officially sponsored by XP Medical and have been working with in the pre-stages of some other things. More will come on that as things progress.
Thank you all for being patient, and I will have two podcasts up here in the next few days.

CJ’s Interview Podcast

I am still out of town, but will be getting CJ’s interview up and running the moment I get back. After that I will be hopefully doing a show with Marc on traveling with/in diapers and reading some emails.

Thanks to all that have commented and emailed. I will be back soon!

Veterans Links – New Info for you to know!

My Health VA
Exposures and Treatments
State Directory for VA Services
http://www.nasdva.org/
VA Help Service and Crisis Centers
http://www.vetcenter.va.gov/
Va Crisis and Mental Health Crisis line
http://www.mentalhealth.va.gov/suicide_prevention/
Health Care enrollment and info for Veterans
http://www4.va.gov/healtheligibility/

Facebook

I have received a lot of emails about creating a facebook page for the podcast and stuff. I want to put it out there that I have no plans on doing that right now. There are so many great support communities, their is no need for me to toss the podcast or blog into the pool.
People can comment or share the blog, it’s post and the podcast on thier own pages already.
I have the Tumblr page and a Twitter account, always free to hit me up there. Facebook just attracts too much security and behavioral problems from people. If you are interested in setting it up and maintaining it let me know and we will talk.